Rett Syndrome....

[1st choice restoration]

My 3 year old little girl has Rett syndrome and there's tough days like today when I could care less about equipment, pricing or water losses. And there are some days I wonder how are we gonna do this.. Cherish and don't take for granted the little things ur children or grandchildren can do....

 

[J Scott W]

So sorry to hear that, John. We are thinking of you, your daughter and the rest of the family.

 

[hogjowl]

So sorry to hear about this. Praying you'll have the strength for this life long condition.

 

[Zee]

I'm sorry your family was given this condition to deal with... I'll keep you and your family in prayer.

Don't give up....!


I know it's easy to say....

 

[Desk Jockey]

Family first. Forget about everything else, its not really not as important.

 

[Cleanworks]

Thoughts and prayers with you and your family.

 

[1st choice restoration]

It's a rare disorder but it just simply robs a child of everything... lose the ability to walk or crawl ,can't talk or communicate, lose the ability to use your hands can't even sit independently anymore and now we have a feeding tube.... but thank the lord she can still smile and know she's loved. I say this because most of us take things for granted and we truly don't know what tomorrow brings. So putting aside profits, wealth, politics or anything else just love each other and simply be nice to people...

 

[Desk Jockey]

So very sorry John. Its sounds heart breaking not being able to help your child. You have my prayers.

 

[Old Coastie]

John, courage. And thank you for the reminders. Your daughter may have just ministered to a large audience...

 

[Bob Pruitt]

I didn't know what Rett Syndrome is until your post John. Yes we take so much for granted. Prayer is all I know to do to help.